PROSPECT Registry for Individuals at Risk for Genetic Prion Disease

Starting soon

Conditions studied: Prion Diseases

In brief

PROSPECT is a prospective observational registry and longitudinal natural history study of adults at risk for genetic prion disease.

Key facts

Study ID

NCT07732608

Run by

University Hospitals Cleveland Medical Center

People needed

1000

Starts

2026-08-17

Expected to finish

2036-08-01

Last updated by the study team

2026-07-30

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Age ≥18 years
• At risk for genetic prion disease based on family history
• Willing to comply with all study procedures including genetic testing and longitudinal follow-up
• Resident in the United States
• Sufficiently proficient in English to participate in all study procedures

You may not qualify if…

• Lacking capacity to independently consent at time of initial enrollment
• Symptomatic of prion disease at time of initial enrollment
• Inability to provide a backup contact

Full record on ClinicalTrials.gov

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