The Development of Paediatric Bronchiectasis Quality of Life Questionnaires for Four Demographic Groups: Children 8-12years, Young People 13 - 17 Years and Parent Proxy Versions for Ages 2-5years and 6-12years

Enrolling by invitation

Conditions studied: Paediatric Bronchiectasis

In brief

To develop and refine a disease-specific quality of life (QoL) questionnaire for children with bronchiectasis, informed by qualitative interviews with affected children, young people, and their parents. The paediatric bronchiectasis- specific quality of life (PQOL-B) questionnaire will be developed across four demographics: Children aged 8-12 years Young people aged 13 -17 years Parent-proxy for 2-5years Parent-proxy for 6-12years

Key facts

Study ID

NCT07728006

Run by

Birmingham Women's and Children's NHS Foundation Trust

People needed

78

Starts

2026-07-30

Expected to finish

2027-09-30

Last updated by the study team

2026-07-27

Who can join

Age: 2 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patient, child and young persons, aged 8 -17 years with bronchiectasis diagnosed on CT scan
• Parent of child aged 2-12 years with bronchiectasis diagnosed on CT scan
• Written informed consent/assent available

You may not qualify if…

• Child under 8 years with bronchiectasis for patient direct participation
• No consent/assent received
• Confirmed Cystic Fibrosis or Primary Ciliary Dyskinesia diagnosis

Where it is running

• Birmingham Womens and Childrens NHS Foundation Trust — Birmingham, United Kingdom

Full record on ClinicalTrials.gov

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