Adult Bladder and Quality of Life Evaluation in Spina Bifida

Recruiting now

Conditions studied: Spina Bifida or Spinal Dysraphism

In brief

Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Researchers will ask people with SB to complete a survey about how they manage their bladder and how it impacts their daily lives. The main goal is to find out if certain bladder management methods are associated with a better quality of life. This information could help doctors make better treatment decisions and counsel young people living with SB.

Key facts

Study ID

NCT07642466

Run by

Blayne Welk

People needed

300

Starts

2025-01-01

Expected to finish

2026-11-01

Last updated by the study team

2026-06-12

Who can join

Age: 13 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosis of SB
• Age ≥13 years of age
• Able to effectively communicate in English or Spanish
• Willing to provide informed consent for participation and answer a set of questionnaires

You may not qualify if…

• Reconstructive surgery or urinary diversion in the last 3 months
• Hospital admission in the last 1 month
• Inconsistent or newly changed (within the last month) method of bladder management

Where it is running

• St Joseph's Hospital — London, Ontario, Canada (enrolling)

Full record on ClinicalTrials.gov

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