Endometriosis Self-Management Strategies

Recruiting now

Conditions studied: Endometriosis, Self-management

In brief

The goal of this observational study is to document the lived experiences of self-managing endometriosis in people living with endometriosis who live in Europe. The main question it aims to answer is: \[How\] do support structures across personal, community, healthcare, and institutional levels influence individuals' experiences of empowerment and abandonment in self-managing endometriosis? Participants will describe the everyday actions they take to live with endometriosis, through diary studies, interviews, and focus groups.

Key facts

Study ID

NCT07591441

Run by

Wageningen University and Research

People needed

150

Starts

2026-01-19

Expected to finish

2029-12-31

Last updated by the study team

2026-05-15

Who can join

Age: 16 and older. Sex: female. Healthy volunteers: not accepted.

You may qualify if…

• living in a European country
• 16 years or older
• having been diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment, even if not having received a definitive surgical diagnosis
• fluent in a language spoken by the research team

You may not qualify if…

• not meeting one of the inclusion criteria

Where it is running

• Leeuwenborch — Wageningen, Netherlands (enrolling)

Full record on ClinicalTrials.gov

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