Development of a Provider-Focused Intervention to Improve Health Outcomes in Pediatric Sickle Cell Disease

Starting soon · Not applicable

Conditions studied: Sickle Cell Disease, Sickle Cell Anemia in Children, Sickle Cell Disease (SCD), Sickle Cell, Sickle Cell Anemia (HbSS)

In brief

The goal of this interventional study is to learn about the impact of an intervention for health care providers that teaches individuation and perspective-taking (IPT) skills to enhance patient-centered communication in pediatric sickle cell disease (SCD). The main question it aims to answer is: Does an intervention that teaches individuation and perspective-taking (IPT) skills to pediatric sickle cell disease (SCD) health care providers (HCPs) enhance patient-centered communication? Researchers will compare the IPT intervention to a control group who will receive education about SCD pain management to see if the IPT intervention improves patient-centered communication. Participants will complete baseline surveys and then be randomly assigned into the intervention or control group. After completing their assigned session (IPT training or education), they will be asked to complete the same surveys as completed at baseline.

Key facts

Study ID

NCT07540767

Run by

Connecticut Children's Medical Center

People needed

30

Starts

2027-09-01

Expected to finish

2030-06-30

Last updated by the study team

2026-04-29

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Licensed health care provider (HCP) who provides care to youth with SCD
• HCP employed by Connecticut Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia and primary work area is Hematology/Oncology

You may not qualify if…

• HCP who does not provide care to youth with SCD
• HCP is a medical trainee, not including fellows
• HCP not employed by CT Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia
• Not fluent in English

Where it is running

• Connecticut Children's Medical Center — Hartford, Connecticut, United States

Full record on ClinicalTrials.gov

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