Developing Resource Interventions for Healthcare Professionals and Patients to Improve Knowledge About Fertility in Primary Ciliary Dyskinesia

Starting soon · Not applicable

Conditions studied: Primary Ciliary Dyskinesia (PCD), Fertility, Pregnancy, Health Information Exchange

In brief

This project will involve working with people with PCD and medical professionals to develop resources that will help patients and the people providing their care to better understand fertility and pregnancy safety in people with this condition.

Key facts

Study ID

NCT07531277

Run by

University of Southampton

People needed

30

Starts

2026-04-01

Expected to finish

2029-03-31

Last updated by the study team

2026-04-15

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Aged 18 years or older
• 'Highly likely' or confirmed diagnosis of Primary Ciliary dyskinesia, or being a healthcare professional, or representative from a stakeholder group e.g. patient led charity
• Able to understand and willing to sign the informed participant consent prior to participation

You may not qualify if…

• Unwilling to participate in the study
• Not meeting inclusion criteria
• Unable to understand or unwilling to sign the informed participant consent prior to participation

Full record on ClinicalTrials.gov

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