Compassionate Care and Organization of Healthcare Services for a Successful Transition in Rheumatology

Recruiting now

Conditions studied: Chronic Inflammatory Rheumatic Diseases of Childhood, Juvenile-Onset Chronic Inflammatory Rheumatic Diseases, Transition of Care in Chronic Inflammatory Rheumatic Diseases

In brief

The transition from pediatric to adult care is a critical period for young people with chronic inflammatory rheumatic diseases (CIRD) and is associated with risks of poor self-management, loss to follow-up, and disease worsening. Although structured transition programs have been recommended, real-world data on their effectiveness in rheumatology remain limited. Since 2018, a structured transition program has been implemented at Bicêtre University Hospital (AP-HP, France), combining early transition preparation, a therapeutic patient education (TPE) workshop, and a joint pediatric-adult transition consultation. Some patients benefit from both components, while others receive a transition consultation only. The BOOST-R study is a monocentric, non-interventional observational study designed to evaluate the impact of different transition modalities on self-management after transfer to adult care. The primary objective is to compare transition readiness, assessed using the validated French version of the Transition Readiness Assessment Questionnaire (TRAQ-FR), between patients who received a TPE workshop plus a transition consultation and those who received a transition consultation only. Secondary objectives include evaluating continuity of care after transition, identifying factors associated with successful transition, assessing the contribution of the RESRIP support network, and describing patients who did not benefit from structured transition support.

Key facts

Study ID

NCT07469787

Run by

Assistance Publique - Hôpitaux de Paris

People needed

50

Starts

2026-02-26

Expected to finish

2027-08-26

Last updated by the study team

2026-04-21

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Age 18 years or older
• Diagnosis of chronic inflammatory rheumatic disease
• Previously followed in pediatric rheumatology at Bicêtre Hospital
• Participation in a joint pediatric-adult transition consultation between 2018 and 2024
• Affiliated with a health insurance system
• No objection expressed to participation after being informed about the study

You may not qualify if…

• Patient lost to follow-up
• No participation in a joint pediatric-adult transition consultation
• Patient under guardianship, curatorship, or legal protection

Where it is running

• CHU Bicêtre — Le Kremlin-Bicêtre, France (enrolling)

Full record on ClinicalTrials.gov

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