Evaluation of the Pulmonary Fibrosis Learning and Self-management Programme (FILIP)
Recruiting now · Not applicable
Conditions studied: Lung Fibrosis Interstitial
In brief
The goal of this observational study is to evaluate the feasibility and acceptability of a newly developed digital education and self-management program for people with fibrotic interstitial lung diseases (FILD) during inpatient pulmonary rehabilitation and outpatient interstitial lung disease (ILD) care. The study also explores whether participation in the program is associated with changes in health-related outcomes. The main questions this study aims to answer are: * Is the digital education and self-management program acceptable, useful, and practical for patients with FILD? * Is it feasible to recruit and retain patients and to collect outcome data for a future larger effectiveness study? * Do patients who participate in the program show differences in health-related outcomes compared with patients treated before the program was implemented? Patients who consent to participate during the implementation phase will be offered access to the digital education and self-management program. Their outcomes will be compared with those of a historical cohort of patients who received usual care before the program was introduced. Participants will: * Use a web-based digital education and self-management program with multiple e-learning modules tailored to individual needs and preferences * Access the program via smartphone, tablet, or computer during inpatient rehabilitation or outpatient care * Discuss questions related to the program content with healthcare professionals during routine rehabilitation sessions or clinic visits * Complete questionnaires about their experience with the program and their health-related outcomes
Key facts
- Study ID
- NCT07457463
- Run by
- Insel Gruppe AG, University Hospital Bern
- People needed
- 80
- Starts
- 2025-10-07
- Expected to finish
- 2027-08-01
- Last updated by the study team
- 2026-03-09
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
Where it is running
- Center for Rehabilitation & Sports Medicine Inselspital and Berner Reha Zentrum, Bern University Hospital, University of Bern, Switzerland — Heiligenschwendi, Switzerland (enrolling)
- Department for Pulmonary Medicine, Allergology and Clinical Immunology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland — Bern, Switzerland
Full record on ClinicalTrials.gov
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