Technology-supported Motor Rehabilitation for People With Rett Syndrome

Running, not enrolling · Not applicable

Conditions studied: Rett Syndrome

In brief

This study focuses on improving purposeful arm use while simultaneously reducing engagement in stereotypies. It is typically expected that the training period for this study will last about 6 months. The first half of the training periods will be devoted to learning to separate hands to stop the stereotypies that interfere with arm and hand use. In this first half, participants will also need to learn to keep arms apart in order to be actively involved in the chosen game. The second half of the training period will be devoted to learning to stop stereotypies and reach for targets that are intended to start game play. When not touching the targets, the software will interpret that the game should stop and wait for the next target to be touched.

Key facts

Study ID

NCT07418905

Run by

Georgetown University

People needed

14

Starts

2024-10-01

Expected to finish

2026-07-31

Last updated by the study team

2026-02-20

Who can join

Age: 4 and older, up to 65. Sex: female. Healthy volunteers: not accepted.

You may qualify if…

• dx of Rett syndrome
• functional range of motion of both arms
• no seizures or seizures managed with medication
• understanding cause and effect
• midline stereotypies

You may not qualify if…

• no competing orthopedic or neuromuscular diagnosis that impacts shoulder movements

Where it is running

• Georgetown University School of Medicine — Bethesda, Maryland, United States

Full record on ClinicalTrials.gov

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