Quality of End-of-Life Care for Children With Cancer

Recruiting now

Conditions studied: Childhood Hematopoietic and Lymphatic System Neoplasm, Childhood Malignant Solid Neoplasm

In brief

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Key facts

Study ID

NCT07412002

Run by

Children's Oncology Group

People needed

2425

Starts

2026-06-15

Expected to finish

2031-01-31

Last updated by the study team

2026-07-16

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Index Child (COG Registered Patient):
• Must be deceased
• < 18 years old at time of death
• Diagnosed with any oncologic condition
• History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild
• Note: history of treatment on a COG therapeutic trial is not required
• Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death
• Bereaved Parent(s):
• Must be a parent, legal guardian, or caregiver (biological or non-biological) of an eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact (e.g., from the APEC14B1 Part B Consent)
• Self-reported confirmation of familiarity with the care received by the Index Child in the last month of their life
• Bereaved parent must understand English or Spanish (written and/or spoken)
• Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact study record or must be referred by one of the APEC14B1 contacts
• Bereaved parent must be >= 18 years old at the time of ALTE24C1 study enrollment
• Regulatory Requirements:
• Bereaved parent must provide verbal or implied informed consent
• For all participants, all institutional, FDA, and NCI requirements for human studies must be met

Where it is running

• Kaiser Permanente-Oakland — Oakland, California, United States (enrolling)
• Alfred I duPont Hospital for Children — Wilmington, Delaware, United States (enrolling)
• Memorial Regional Hospital/Joe DiMaggio Children's Hospital — Hollywood, Florida, United States (enrolling)
• Nemours Children's Clinic-Jacksonville — Jacksonville, Florida, United States (enrolling)
• Nemours Children's Hospital — Orlando, Florida, United States (enrolling)
• Nemours Children's Clinic - Pensacola — Pensacola, Florida, United States (enrolling)
• Sinai Hospital of Baltimore — Baltimore, Maryland, United States (enrolling)
• Corewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital — Grand Rapids, Michigan, United States (enrolling)
• Bronson Methodist Hospital — Kalamazoo, Michigan, United States (enrolling)
• Albany Medical Center — Albany, New York, United States (enrolling)
• Montefiore Medical Center - Moses Campus — The Bronx, New York, United States (enrolling)
• Children's Hospital of Pittsburgh of UPMC — Pittsburgh, Pennsylvania, United States (enrolling)
• Rhode Island Hospital — Providence, Rhode Island, United States (enrolling)
• UT Southwestern/Simmons Cancer Center-Dallas — Dallas, Texas, United States (enrolling)
• University of Virginia Cancer Center — Charlottesville, Virginia, United States (enrolling)

Full record on ClinicalTrials.gov

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