Improving Engagement From Underserved Communities With Prostate Cancer Genetics Services

Starting soon

Conditions studied: Prostate Cancer

In brief

Earlier work explored barriers and facilitators to accessing prostate cancer screening, particularly in underserved communities, and provided valuable insights to build upon. This study will explore perspectives on how genetic risk for prostate cancer is explained and understood through in-depth interviews with members of underserved communities. Findings from this work, alongside earlier results, will be used to co-design clear and accessible digital educational resources in collaboration with community members and relevant charities. Participation in cancer screening programmes in the UK varies, with differences linked to socioeconomic status, ethnicity and health literacy. Similar inequalities are seen in access to prostate cancer genetics services, indicating a need for improved engagement. Successful integration of genetics into prostate cancer care requires clear and inclusive information about genetic testing processes, possible outcomes and interpretation of results. Currently, there are limited resources explaining genetic risk for prostate cancer in an accessible way. Co-production with representatives from underserved communities will ensure that educational materials are understandable, relevant and acceptable to all.

Key facts

Study ID

NCT07407686

Run by

Royal Marsden NHS Foundation Trust

People needed

100

Starts

2026-02-28

Expected to finish

2027-12-31

Last updated by the study team

2026-02-12

Who can join

Age: 18 and older. Sex: male. Healthy volunteers: accepted.

You may qualify if…

• Men and people with prostates age 18 and above
• Those who belong to the three underserved groups; Black African and Black Caribbean Ancestry, transgender and non-binary people with a prostate and those with reduced access to healthcare
• We allow intersectionality within reason and will narratively describe any instances of these in the writeup of findings
• Those who are able to freely consent to inclusion
• Individuals with and without a lived experience of prostate cancer

You may not qualify if…

• To avoid exhaustion, we will only allow participation in two interview or focus groups per individual for the entirety of the study
• Those without capacity to consent to interview (capacity is assumed unless there is good reason to believe otherwise)

Full record on ClinicalTrials.gov

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