Longitudinal Ulnar Deficit (ULNEER)

Starting soon

Conditions studied: Ulnar Longitudinal Deficiency, Ulnar Hand Deformity

In brief

The management of patients with longitudinal ulnar deficiency is a clinical challenge due to the rarity of this condition and the wide variety of its manifestations. In particular, there is no consensus in the literature on the indications for surgery. The aim of this research is to improve understanding and management of this malformation by analyzing existing data from patient medical follow-up. No new clinical evaluations or occupational therapy assessments will be performed specifically for this study. The analysis will be based on previous medical and paramedical data (consultation reports, imaging, occupational therapy assessments, etc.) in order to better describe the functional evolution of patients and identify the decision-making criteria that guide surgical management. Parents will also receive standardized questionnaires (PROMIS and ABILHAND-Kids-CP) to gather their perceptions of their child's quality of life and independence. The results will be used to propose recommendations for a more consistent and multidisciplinary assessment of longitudinal ulnar deficit in the future.

Key facts

Study ID

NCT07404514

Run by

Hopitaux de Saint-Maurice

People needed

28

Starts

2026-02-01

Expected to finish

2026-09-01

Last updated by the study team

2026-02-13

Who can join

Age: 3 and older, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with unilateral or bilateral ulnar hand deformity, whether operated on or not
• Follow-up at CEREFAM and/or Trousseau Hospital
• Complete medical records containing previous assessments

You may not qualify if…

• Non-French-speaking patient
• No preoperative or postoperative assessment

Where it is running

• Hôpitaux Paris Est Val-de-Marne - Centre de Référence des Malformations des Membres — Saint-Maurice, France

Full record on ClinicalTrials.gov

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