MND Together: Phase 1
Starting soon
Conditions studied: MND (Motor Neurone DIsease)
In brief
This project consists of two workstreams, both of which will be mixed-methods and aim to develop a national UK picture of current care coordination for people with MND, including observations of barriers and facilitators. The studies will explore how care is transferred and communicated across MND specialist services to non-specialist community health settings. In workstream 1, the researchers will conduct focus groups with people with MND, Carers, former Carers, Health and Social Care Professionals and managers and commissioners. These focus groups, alongside the analysis of routine data, will create a national picture of MND care and begin a behavioural diagnosis of the barriers and facilitators. In workstream 2, a multi-site ethnography study will be conducted, including observations, interviews, routine data, care plan and document review. This Workstream will observe how care is coordinated between specialist and non-specialist services and continue to explore barriers and facilitators that can not be identified through interviews.
Key facts
- Study ID
- NCT07393932
- Run by
- University of Sheffield
- People needed
- 287
- Starts
- 2026-02-01
- Expected to finish
- 2027-02-01
- Last updated by the study team
- 2026-02-06
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- Person with MND, carers, former carers, Health and Social Care Professionals, managers and commissioners
- Ability to engage in focus group or interview or email interview
You may not qualify if…
- no exclusion criteria
- WS2
- Inclusion Criteria:
- Person with MND, carers, former carers, Health and Social Care Professionals, managers and commissioners
- Ability to engage in an observations and interviews
- Exclusion Criteria:
- no exclusion criteria
Where it is running
- School of Medicine and Populational Health — Sheffield, Yorkshire, United Kingdom
Full record on ClinicalTrials.gov
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