Self-Efficacy Enhancement Using a Multicomponent Support Group for Caregivers of Children With DMD/SMA

Starting soon · Not applicable

Conditions studied: Duchenne Muscular Dystrophy (DMD), Spinal Muscular Atrophy (SMA)

In brief

The goal of this clinical trial is to learn if providing a multicomponent intervention improves the confidence of caregivers of children with DMD or SMA. The main question it aims to answer is: Does this intervention increase their self-efficacy scores over 8 weeks time? Researchers will compare scores at baseline (pre intervention) and after 8 weeks (post intervention)

Key facts

Study ID

NCT07356063

Run by

Aga Khan University

People needed

30

Starts

2026-02-23

Expected to finish

2026-05-23

Last updated by the study team

2026-01-22

Who can join

Age: any. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Primary caregiver of a child diagnosed with SMA or DMD.
• Enrolled in the Treat-NMD registry- Pakistan.
• Access to a smart phone with internet connectivity.

You may not qualify if…

• Caregivers who are currently participating in another support group intervention.
• Caregivers who are unable to understand the language of communication (Urdu)

Full record on ClinicalTrials.gov

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