Quality of Life in Hereditary and Inflammatory Peripheral Neuropathies
Starting soon
Conditions studied: Hereditary and Inflammatory Peripheral Neuropathies
In brief
Neuromuscular diseases affect the nerves and muscles and can cause weakness, pain, fatigue, and difficulties in daily life. These problems may reduce independence, social participation, and overall quality of life.This observational study aims to evaluate the impact of peripheral neuropathies on quality of life. It focuses on two types of peripheral neuropathies: hereditary neuropathies, caused by genetic factors, and inflammatory neuropathies, caused by immune-related nerve damage. Adult patients with these conditions will be assessed at a single time point, without any change to their usual medical care. Participants will complete questionnaires about daily functioning, well-being, and quality of life. Some questions will also explore the use of assistive devices and supportive tools in everyday life.The study hypothesizes that peripheral neuropathies significantly affect quality of life and that this impact differs between hereditary and inflammatory forms. The results aim to improve understanding of patients' needs and support better, more personalized care."
Key facts
- Study ID
- NCT07340749
- Run by
- Centre Hospitalier Universitaire de Nice
- People needed
- 60
- Starts
- 2026-02-01
- Expected to finish
- 2026-07-01
- Last updated by the study team
- 2026-01-14
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Clinical and paraclinical diagnosis compatible with hereditary or inflammatory peripheral neuropathy, confirmed by the investigating physicians (genetic results for HPN if available; clinical/electrophysiological criteria for IPN).
- Written informed consent.
- Ability to complete the questionnaires (or with the assistance of a caregiver if necessary, specifying the mode of assistance).
You may not qualify if…
- Legal incapacity (under guardianship or conservatorship).
- Moderate to severe cognitive impairment (e.g., MMSE < 27) preventing valid comprehension and completion of the questionnaires.
- Active cancer undergoing chemotherapy or radiotherapy (treatment likely to significantly alter quality of life in a non-specific way).
- Other acute serious medical conditions that could interfere with assessment, at the investigator's discretion.
Where it is running
- CHU de Nice — Nice, Alpes Maritimes, France
Full record on ClinicalTrials.gov
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