Healing ALS Registry Observational Study (HAROS)

Recruiting now

Conditions studied: Amyotrophic Lateral Sclerosis (ALS), Motor Neuron Disease (MND), Primary Lateral Sclerosis (PLS)

In brief

This is a prospective, observational, online study of people diagnosed with ALS, MND or PLS referred to as HAROS (Healing ALS Registry Observational Study). Participants will enter information into an online ALS registry once per month, including their ALSFRS-R data, certain other symptoms, dietary intake, supplements, medications and other therapies, both conventional and integrative. Participants will also enter the hours spent on optional self-study and free online education. The investigators will assess the effectiveness of various therapies and education by measuring physical outcomes.

Key facts

Study ID

NCT07233148

Run by

Healing Advocates Registry and Ministry

People needed

1000

Starts

2026-01-26

Expected to finish

2036-03-31

Last updated by the study team

2026-06-24

Who can join

Age: 18 and older, up to 110. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Diagnosed with ALS, MND or PLS

You may not qualify if…

• Smokers

Where it is running

• Virtual — Park City, Utah, United States (enrolling)

Full record on ClinicalTrials.gov

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