Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

Recruiting now

Conditions studied: Spinal Muscular Atrophy (SMA)

In brief

Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.

Key facts

Study ID

NCT07223489

Run by

Medstar Health Research Institute

People needed

200

Starts

2025-10-10

Expected to finish

2026-12-30

Last updated by the study team

2026-01-16

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• SMA diagnosis, age greater than or equal to 18 years

You may not qualify if…

• Deceased

Where it is running

• MedStar Health Research Institute — Washinton, District of Columbia, United States (enrolling)

Full record on ClinicalTrials.gov

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