BE.Amycon Biobank & Data Registry UZ Leuven

Recruiting now

Conditions studied: Amyloidosis, AL Amyloidosis, Amyloidosis Cardiac

In brief

The goal of this study is to collect and store human body material (HBM) of patients with amyloidosis in a biobank "BE.Amycon biobank" for future research and to collect clinical data of patients with amyloidosis in a database "BE.Amycon data registry".

Key facts

Study ID

NCT07172243

Run by

Universitaire Ziekenhuizen KU Leuven

People needed

505

Starts

2025-09-24

Expected to finish

2030-01-01

Last updated by the study team

2026-02-27

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Provide consent and sign informed consent form
• Age 18 years or older
• Diagnosis of amyloidosis (suspected or confirmed, any subtypes)
• For the prospective sample collection only: newly diagnosed (any subtype) or at relapse (AL amyloidosis)

You may not qualify if…

• Not willing to sign informed consent
• Not able to sign informed consent

Where it is running

• UZ Leuven Gasthuisberg - hematology — Leuven, Belgium (enrolling)
• UZ Leuven Gasthuisberg - cardiology — Leuven, Belgium (enrolling)

Full record on ClinicalTrials.gov

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