Phase 4 of Designed With You

Recruiting now · Not applicable

Conditions studied: Disability Physical

In brief

The purpose of this study is to provide evaluate the feasibility of a structured 8-10-week, multi-component intervention that integrates individualized resource navigation, personalized self-care planning, emergency and end of life (EOL) preparedness, and peer support to improve the well-being, resource access and social connectedness of caregivers with disabilities. For this study we are interested in caregivers over the age of 18 who have some form (e.g. mobility or sensory) disability and are caring for a person with a disability and/or a chronic illness.

Key facts

Study ID

NCT07157995

Run by

Johns Hopkins University

People needed

20

Starts

2026-01-01

Expected to finish

2026-10-30

Last updated by the study team

2026-07-02

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• 18 years of age and older,
• Community dwelling in the state of Maryland,
• Self report of physical or sensory disability and
• self-report of serving as a family caregiver for a person for at least 10 hours/week.

You may not qualify if…

• have a terminal diagnosis (<1 year expected survival), and
• > severe cognitive impairment (5-7 errors) based on the Short Portable Mental Status Questionnaire (SPMQ)

Where it is running

• Johns Hopkins School of Nursing — Baltimore, Maryland, United States (enrolling)

Full record on ClinicalTrials.gov

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