Applying Population Management Best Practices to Preventative Genomic Medicine Trial

Enrolling by invitation · Not applicable

Conditions studied: Neoplastic Syndromes, Hereditary

In brief

Preventive genomic medicine, particularly identification of individuals with inherited cancer risk, can improve longevity and quality of life, yet adherence to risk management following cancer genomic testing is poor. The proposed research refines and evaluates two highly scalable population management interventions, web resources and personalized outreach, designed to improve access and use of recommended risk management following cancer genetic testing. Research activities will be conducted in a vertically integrated health system and federally qualified health center and will address post-testing quality and patient safety concerns that are minimizing patient benefit and slowing investments in real world genomic medicine implementation.

Key facts

Study ID

NCT07053813

Run by

University of Washington

People needed

900

Starts

2025-07-01

Expected to finish

2028-07-01

Last updated by the study team

2026-02-27

Who can join

Age: 18 and older, up to 75. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Clinically actionable variant in at least one high penetrance cancer-related gene
• Age- and sex- eligible for guideline indicated risk management
• Remains eligible for risk management, given personal cancer and surgical history

You may not qualify if…

• Previously opted out of research
• Previously opted out of genetic research
• On hospice or palliative care
• Has advanced dementia or severe cognitive impairment

Where it is running

• Denver Health — Denver, Colorado, United States
• Kaiser Northwest — Portland, Oregon, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.