Dutch Registry of Pediatric Cardiac Arrest

Recruiting now

Conditions studied: Cardiac Arrest (CA), Pediatric ALL

In brief

The goal of this observational study is to understand the long-term outcomes of children in the Netherlands who experience cardiac arrest, either in or outside of the hospital. The main questions it aims to answer are: What are the survival rates and neurological outcomes in children after cardiac arrest? What types of emergency and post-resuscitation care are provided, and how do they impact long-term recovery? How do children and their families function over time after the event? Researchers will analyze data from routine medical records and follow patients through standard outpatient visits. No extra procedures will be required beyond normal care. For those who survive to hospital discharge, additional follow-up data will be collected with consent. Participants will: Be children under 18 years old who have had a cardiac arrest and were treated in one of the seven participating academic hospitals Have their routine medical care data collected anonymously Be invited (if surviving) for follow-up visits at 3, 12, and 24 months post-arrest and at specific ages (5, 8, 12, and 17 years) to assess physical and psychological recovery

Key facts

Study ID

NCT06938009

Run by

Matthijs de Hoog

People needed

500

Starts

2023-06-14

Expected to finish

2030-01-01

Last updated by the study team

2025-04-22

Who can join

Age: 0 and older, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Pediatric patients under the age of 18
• Experienced in-hospital or out-of-hospital cardiac arrest in the Netherlands
• Attended by emergency medical services or admitted to one of the seven participating Dutch academic pediatric hospitals
• Cardiac arrest defined as absence of palpable pulse or need for chest compressions lasting ≥1 minute
• Arrest managed under European Resuscitation Council guidelines (BLS/APLS)

You may not qualify if…

• Cardiac arrest occurring in neonates younger than 24 hours of age
• Cardiac arrest occurring in a neonatal intensive care unit (NICU) setting

Where it is running

• Radboud umc — Nijmegen, Gelderland, Netherlands (enrolling)
• MUMC — Maastricht, Limburg, Netherlands (enrolling)
• Amsterdam UMC — Amsterdam, North Holland, Netherlands (enrolling)
• UMCG — Groningen, Provincie Groningen, Netherlands (enrolling)
• LUMC — Leiden, South Holland, Netherlands (enrolling)
• Erasmus MC — Rotterdam, South Holland, Netherlands (enrolling)
• UMCU — Utrecht, Utrecht, Netherlands (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.