Deep Brain Stimulation (DBS) MatchMaker

Enrolling by invitation

Conditions studied: TOR1A, PANK2, HPRT1, EIF2AK2, SOX2, KMT2B, GABRB2, ADCY5, UBA5, GNAO1, SGCE, TNPO2, GNB1, PLA2G6, Movement Disorders, Dystonia, Chorea

In brief

DBS Matchmaker (https://www.dbsmatchmaker.com) is a platform designed to connect clinicians worldwide who are treating rare movement disorders with deep brain stimulation (DBS). It facilitates global collaboration and knowledge sharing to enhance patient care by improving patient selection, counseling, treatment, and outcomes for individuals with movement disorders.

Key facts

Study ID

NCT06912841

Run by

Boston Children's Hospital

People needed

500

Starts

2024-12-01

Expected to finish

2030-12-01

Last updated by the study team

2026-04-13

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Individuals of all ages with genetic movement disorders, who are undergoing or being considered for DBS treatment.

You may not qualify if…

• Individuals who have not undergone DBS treatment.

Where it is running

• Boston Children's Hospital — Boston, Massachusetts, United States

Full record on ClinicalTrials.gov

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