CZI Rare As One: Co-designing an App and Wearable Based Compass for Rare Diseases
Completed
Conditions studied: Pancreatitis, Chronic, Sarcoidosis, VCP Disease, Long COVID, PCD, Symptoms and Signs, Wearables
In brief
The CZI Rare As One study is a Chan Zuckerberg Initiative funded study that aims to co-design and pilot test unique symptom tracking and transmitting apps across 5 different sub-arms that includes individuals with Long COVID, Pancreatitis, Sarcoidosis, Vasolin-Containing Protein (VCP) disease and Primary Ciliary disease (PCD). This study aims to use multimodal digital health tools to enable patients to self-monitor their symptoms in passive and active ways.
Key facts
- Study ID
- NCT06907953
- Run by
- 4YouandMe
- People needed
- 239
- Starts
- 2025-02-06
- Expected to finish
- 2025-07-01
- Last updated by the study team
- 2025-08-12
Who can join
Age: 14 and older. Sex: any. Healthy volunteers: not accepted.
Where it is running
- 4YouandMe — New York, New York, United States
Full record on ClinicalTrials.gov
Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.