Essen Amyloidosis Registry

Recruiting now

Conditions studied: Amyloidosis; Systemic, Amyloidosis Cardiac

In brief

The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.

Key facts

Study ID

NCT06887283

Run by

University Hospital, Essen

People needed

400

Starts

2024-05-08

Expected to finish

2029-07-01

Last updated by the study team

2025-08-21

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Suspected or confirmed amyloidosis (any)
• Written informed consent to participate in the study
• Age 18 years and above

You may not qualify if…

• Age < 18 years
• Lack of written informed consent

Where it is running

• University Hospital Essen — Essen, North Rhine-Westphalia, Germany (enrolling)

Full record on ClinicalTrials.gov

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