Dementia Caregivers' Link to Assistance and Resources

Recruiting now · Not applicable

Conditions studied: Alzheimer Disease or Associated Disorder, Dementia

In brief

The goal of this clinical trial is to learn if the Dementia Caregivers' Link to Assistance and Resources (DECLARE) program can improve support of, and engagement with, caregivers of home health patients with dementia. DECLARE includes a caregiver self-assessment that is reported in the home health patient record, and increased access to social work for cases including dementia caregivers. The main questions we aim to answer are: * Will most caregivers who are offered the chance to complete an assessment choose to do so? * Will clinicians report that the assessment information was useful? * Will the rate of social work access increase for cases with patients with dementia who have involved family caregivers? Researchers will compare DECLARE to usual care to see if taking part in the program increases caregiver self-efficacy and access to social work. Participants will: * Answer a short series of assessment questions and questions about their caregiving experiences at the beginning of the home health episode. * Receive a social work visit from a Licensed Social Worker trained in dementia care. * Answer a series of follow-up questions about their caregiving experiences at the end of the home health episode.

Key facts

Study ID

NCT06860035

Run by

Visiting Nurse Service of New York

People needed

200

Starts

2025-05-05

Expected to finish

2026-06-30

Last updated by the study team

2026-03-13

Who can join

Age: any. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Individual must be listed as the caregiver of record for a patient receiving home health care from the partner home health agency and have a phone number on file; the patient must meet the inclusion criteria listed below.
• Home health patient (care recipient) must have a documented dementia diagnosis on the home health assessment, be 65 years or older, and have Traditional Medicare or Medicare Advantage as their primary payer for the home health episode.

You may not qualify if…

• Caregivers are excluded if they are unable to communicate in English.

Where it is running

• VNS Health Home Care — New York, New York, United States (enrolling)

Full record on ClinicalTrials.gov

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