ATHNdataset Registry

Recruiting now

Conditions studied: Hemophilia, Thrombosis, Hemophilia A, Hemophilia B, Sickle Cell Disease, Glanzmann Thrombasthenia, Bleeding Disorder, Blood Disorder, Von Willebrand Diseases

In brief

The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems. Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.

Key facts

Study ID

NCT06820515

Run by

American Thrombosis and Hemostasis Network

People needed

200000

Starts

2024-10-25

Expected to finish

2055-10-31

Last updated by the study team

2026-04-21

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate.
• Participants of any age.
• Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent

You may not qualify if…

• Any participant unable to provide consent or assent to participate in the ATHNdataset

Where it is running

• American Thrombosis and Hemostasis Network — Hickory, North Carolina, United States (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.