Video Inspired Discussions About Ethical Outcomes in Pediatrics
Recruiting now · Not applicable
Conditions studied: Pediatric Cancer
In brief
The goal of this clinical trial is to learn if the VIDEO-PEDS intervention works to improve Goals of Care communication between clinicians and parents of children with cancer. The main questions it aims to answer are: Does the intervention improve Goals of Care documentation? Does it improve patient outcomes (including less invasive preferences for resuscitation and interventions, less hospital utilization, and more palliative care and hospice use)? Does it improve parent outcomes (including health satisfaction and feeling heard and understood per survey scores)?
Key facts
- Study ID
- NCT06786104
- Run by
- Massachusetts General Hospital
- People needed
- 567
- Starts
- 2026-05-05
- Expected to finish
- 2030-04-15
- Last updated by the study team
- 2026-05-14
Who can join
Age: any. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- Patient
- Age 0-12 years
- Diagnosed with any type or stage of cancer
- Receiving cancer directed treatment
- Parent
- Decision maker for the child.
- Biological parent, step-parent, legal guardian (e.g., adoptive parent), or grandparent with medical consent authority.
- Has a child meeting the child inclusion criteria listed above.
- Able to communicate in English or Spanish (the languages of the video decision aids).
You may not qualify if…
- Patient
- Not receiving primary medical care from the cancer clinic (e.g., second-opinion consultations only)
- Already referred to and fully consulted by the palliative care team
- Prognosis of less than a 2-month life expectancy
- Parent
- Visually impaired beyond 20/200 corrected and unable to view the video (note: hearing impaired is not an exclusion as the videos are closed captioned).
- Psychological state not appropriate for GOC discussions, as determined by the primary oncologist per the opt-out.
- Participants who do not speak English or Spanish
Where it is running
- Children's of Alabama at Birmingham — Birmingham, Alabama, United States (enrolling)
- Children's Hospital of Atlanta — Atlanta, Georgia, United States (enrolling)
- Dana Farber Cancer Institute — Boston, Massachusetts, United States (enrolling)
- Dartmouth Hitchcock Medical Center — Lebanon, New Hampshire, United States
Full record on ClinicalTrials.gov
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