Polycystic Kidney Disease 1 (PKD1) Gene Variant Groups in Autosomal Dominant Polycystic Kidney Disease
Running, not enrolling
Conditions studied: Autosomal Dominant Polycystic Kidney Disease (ADPKD)
In brief
The purpose of this study is to estimate the prevalence, demographic, and clinical characteristics of PKD1/2 gene variant groups in the ADPKD population.
Key facts
- Study ID
- NCT06747572
- Run by
- Vertex Pharmaceuticals Incorporated
- People needed
- 401
- Starts
- 2024-12-19
- Expected to finish
- 2026-12-31
- Last updated by the study team
- 2026-07-21
Who can join
Age: 12 and older, up to 65. Sex: any. Healthy volunteers: not accepted.
Where it is running
- Alabama Kidney Research — Alabaster, Alabama, United States
- University of Alabama at Birmingham- Nephrology Research Clinic — Birmingham, Alabama, United States
- Kaiser Permanente - Los Angeles Medical Center — Los Angeles, California, United States
- UCLA Division of Nephrology — Los Angeles, California, United States
- Helen Diller Medical Center at Parnassus Heights — San Francisco, California, United States
- Nephrology & Hypertension Associates, PC — Middlebury, Connecticut, United States
- Yale Nephrology Clinical Research Clinic — New Haven, Connecticut, United States
- Nature Coast Clinical Research - Inverness — Inverness, Florida, United States
- Mayo Clinic - Jacksonville — Jacksonville, Florida, United States
- Emory School of Medicine - Renal Division — Atlanta, Georgia, United States
- Renal Associates, LLC — Columbus, Georgia, United States
- UChicago Medicine - Duchossois Center for Advanced Medicine - Nephrology — Chicago, Illinois, United States
- University of Iowa Health Care Medical Center- Nephrology — Iowa City, Iowa, United States
- University of Kansas Medical Center — Kansas City, Kansas, United States
- General Clinical Research Center, University of Maryland Baltimore — Baltimore, Maryland, United States
- Tufts Medical Center — Boston, Massachusetts, United States
- Beth Israel Deaconess Medical Center - Nephrology — Boston, Massachusetts, United States
- Quest Research Institute — Farmington Hills, Michigan, United States
- University of Minnesota -Health Clinical Research Unit — Minneapolis, Minnesota, United States
- Mayo Clinic - Rochester — Rochester, Minnesota, United States
- DaVita Clinical Research — Las Vegas, Nevada, United States
- Columbia University Medical Center — New York, New York, United States
- Geisinger Clinic — Danville, Pennsylvania, United States
- Perelman Center for Advanced Medicine - Nephrology — Philadelphia, Pennsylvania, United States
- Nephrology Clinical Trials Center — Nashville, Tennessee, United States
Full record on ClinicalTrials.gov
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