Patient and Caregiver Priorities in Neuro-oncology Care

Completed

Conditions studied: Malignant Central Nervous System Neoplasm, Metastatic Malignant Neoplasm in the Central Nervous System

In brief

This study is being done to identify patient and caregiver burdens regarding their experience with diagnosis and treatment of CNS tumors. These results will help doctors find areas where patients and caregivers may need more support.

Key facts

Study ID

NCT06676306

Run by

Mayo Clinic

People needed

33

Starts

2024-04-24

Expected to finish

2026-01-22

Last updated by the study team

2026-04-01

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• * Age ≥ 18 years.
• Diagnosis of primary or metastatic CNS tumor with a primary caregiver, should patient wish to involve one.
• Willing and able to participate in a semi-structured interview lasting approximately 60 minutes. Dyad interviews conducted for participants who elect to involve a caregiver.
• Willing and able to participate in a single follow-up interview. Dyad follow up interviews conducted for participants who elect to involve a caregiver.

You may not qualify if…

• * Uncontrolled and/or intercurrent illness which limits participation in study interview.
• Vulnerable populations: pregnant or nursing persons, prisoners, or persons lacking capacity for understanding.
• Unable to read and speak English.
• Note: English does not need to be primary language.

Where it is running

• Mayo Clinic in Rochester — Rochester, Minnesota, United States

Full record on ClinicalTrials.gov

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