JAG201 Gene Therapy Study in Children & Adults With SHANK3 Haploinsufficiency

Recruiting now · Phase 1/Phase 2

Conditions studied: SHANK3 Haploinsufficiency, Phelan-McDermid Syndrome

In brief

This is a Phase 1/2, first in human, open-label, dose-escalation study to evaluate the safety, tolerability, and clinical activity of a single dose of JAG201 administered via intracerebroventricular (ICV) injection in pediatric and adult participants with SHANK3 haploinsufficiency resulting from SHANK3 loss of function mutations and chromosomal deletions encompassing the SHANK3 gene. Clinical data will be evaluated for safety, tolerability, and preliminary clinical activity of JAG201 in pediatric and adult participants with SHANK3 haploinsufficiency. The pediatric cohorts will start enrolling first and the enrollment for adult cohorts may be initiated at a later timepoint in the study.

Key facts

Study ID
NCT06662188
Run by
Jaguar Gene Therapy, LLC
People needed
6
Starts
2024-01-07
Expected to finish
2031-06-01
Last updated by the study team
2026-02-09

Who can join

Age: 2 and older, up to 9. Sex: any. Healthy volunteers: not accepted.

Where it is running

Full record on ClinicalTrials.gov

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