Understanding the Natural History Early in the Course or Presentation of Friedreich Ataxia
Withdrawn before enrolling
Conditions studied: Friedreich Ataxia, Rare Diseases
In brief
Multicenter, prospective, observational natural history and outcome measure study of children and young adults with Friedreich ataxia.
Key facts
- Study ID
- NCT06560346
- Run by
- Friedreich's Ataxia Research Alliance
- People needed
- 0
- Starts
- 2025-05-01
- Expected to finish
- 2028-12-01
- Last updated by the study team
- 2025-06-08
Who can join
Age: 4 and older, up to 21. Sex: any. Healthy volunteers: accepted.
Where it is running
- University of Iowa, Stead Family Children's Hospital — Iowa City, Iowa, United States
- Children's Hospital of Philadelphia — Philadelphia, Pennsylvania, United States
- St. Jude Children's Research Hospital — Memphis, Tennessee, United States
- Murdoch Childrens Research Institute — Parkville, Victoria, Australia
- McGill University Health Centre - Montreal Neurological Institute — Montreal, Quebec, Canada
- University Hospital Aachen, Dept. of Neurology — Aachen, Germany
- Bambino Gesù Children's Hospital, Department of Neurosciences — Roma, Italy
Full record on ClinicalTrials.gov
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