International CRDS Registry

Recruiting now

Conditions studied: Calcium Release Deficiency Syndrome

In brief

Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypic spectrum, approaches to risk stratification, and optimal treatment strategies.

Key facts

Study ID

NCT06508164

Run by

Population Health Research Institute

People needed

500

Starts

2024-11-21

Expected to finish

2050-12-31

Last updated by the study team

2026-08-04

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

Where it is running

• University of California — San Francisco, California, United States (enrolling)
• Mayo Clinic — Rochester, Minnesota, United States (enrolling)
• Duke University — Durham, North Carolina, United States (enrolling)
• Inova Health Care Services — Fairfax, Virginia, United States (enrolling)
• Garvan Institute of Medical Research — Darlinghurst, New South Wales, Australia (enrolling)
• Antwerp University Hospital — Edegem, Antwerp, Belgium (enrolling)
• Universitair Ziekenhuis Brussel — Brussels, Belgium (enrolling)
• University of Calgary — Calgary, Alberta, Canada (enrolling)
• Children's & Women's Health Centre of British Columbia — Vancouver, British Columbia, Canada (enrolling)
• The University of British Columbia — Vancouver, British Columbia, Canada (enrolling)
• Hamilton General Hospital — Hamilton, Ontario, Canada (enrolling)
• London Health Sciences Centre - University Hospital — London, Ontario, Canada (enrolling)
• Ottawa Heart Institute — Ottawa, Ontario, Canada (enrolling)
• Montréal Heart Institute — Montreal, Quebec, Canada (enrolling)
• Institut Universitaire de Cardiologie et de Pneumologie de Québec-Université Laval — Québec, Quebec, Canada (enrolling)
• Aarhus University Hospital — Aarhus, Denmark (enrolling)
• CHU de Bordeaux — Bordeaux, New Aquitaine, France (enrolling)
• Shaare Zedek Medical Center — Jerusalem, Israel (enrolling)
• Oxford University Hospitals — Oxford, Oxfordshire, United Kingdom (enrolling)
• City St George's, University of London — London, United Kingdom (enrolling)

Full record on ClinicalTrials.gov

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