Using Parent Engagement to Improve the Wellbeing of Black Premature Infants With Chronic Lung Disease

Starting soon · Not applicable

Conditions studied: Chronic Lung Disease

In brief

The goal of this pilot study is to test the feasibility and acceptability of a collaborative goal setting intervention to improve parent engagement of Black preterm infants with chronic lung disease in primary care. Preliminary impact on child and parent outcomes will also be explored. The main questions it aims to answer are: 1) Will parents complete a pre-visit questionnaire that asks about goals for the child? 2) Does use of the pre-visit questionnaire help parents to achieve self-identified goals? Participants will fill out a pre-visit questionnaire prior to the child's well visit. The participants will then complete two surveys after the visit (1 week and 2 months after).

Key facts

Study ID

NCT06474767

Run by

Johns Hopkins University

People needed

30

Starts

2026-12-01

Expected to finish

2027-12-30

Last updated by the study team

2026-07-17

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Parent/legal guardian of child born prior to 37 weeks gestational age
• Parent/legal guardian of child with diagnosis of chronic lung disease or bronchopulmonary dysplasia, as defined by the child's clinical team at the time of hospital discharge
• Parent/legal guardian of child who identifies that child's race as Black
• English speaking

You may not qualify if…

• Parent/legal guardian of child enrolled in palliative care or hospice services at time of hospital discharge
• Parent/legal guardian of child older than 12 months chronological age

Full record on ClinicalTrials.gov

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