RESPECT: (REsearching Stigma in PEdiatric Cancer Tool)

Completed

Conditions studied: Stigma

In brief

Researchers want to learn more about the way stigma affects children with cancer and their caregivers. They want to develop two clinical tools to identify and measure stigma in the pediatric cancer population within culturally diverse global settings of the United States, Guatemala, and Jordan. Primary Objectives * Develop two clinical tools that can be used to identify and measure stigma as experienced by (1) pediatric oncology patients/survivors and (2) their guardians/caregivers in culturally diverse global settings. * Pilot new stigma tools in geographically and culturally diverse cancer referral settings in the United States, Guatemala, and Jordan.

Key facts

Study ID

NCT06470230

Run by

St. Jude Children's Research Hospital

People needed

633

Starts

2024-07-08

Expected to finish

2026-03-06

Last updated by the study team

2026-03-19

Who can join

Age: 8 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Cognitive Debriefing and Pilot Data Collection - Patients/Survivors
• Age 8 to 17.9 years of age
• Active cancer patients or survivors of cancer
• Cognitive Debriefing and Pilot Data Collection - Parent/Caregivers
• Adult parents or caregivers (≥ 18 years of age) of active cancer patients or survivors of cancer.
• Exclusion Criteria: NA

Where it is running

• Washington University School of Public Health — St Louis, Missouri, United States
• St. Jude Children's Research Hospital — Memphis, Tennessee, United States
• UNOP Unidad Nacional De Oncologia Pediatrica — Guatemala City, Guatemala
• King Hussein Cancer Center — Amman, Jordan

Full record on ClinicalTrials.gov

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