The Co-Op @ HeartWorks

Recruiting now

Conditions studied: Congenital Heart Disease

In brief

This protocol is a research study involving human subjects diagnosed with Congenital Heart Defects/Disease (CHD). The Co-Op @ HeartWorks is a cooperative between the research platform at HeartWorks and members of the CHD community. Individuals choosing to participate will be referred to as 'members' of the co-op. This study aims to create a database of members medical journey data to inform future clinical innovation and design of clinical trials which address the needs of the members. The knowledge generated from this study will help advance the care of CHD patients through the deliberate action of The Co-Op @ HeartWorks members. Unlike a traditional disease registry, the members of The Co-Op @ HeartWorks will actively inform and contribute to the future studies affecting their health.

Key facts

Study ID

NCT06469918

Run by

HeartWorks, Inc.

People needed

500

Starts

2024-01-24

Expected to finish

2050-01-01

Last updated by the study team

2025-10-07

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Adult with a congenital heart defects/disease
• Caregiver of a minor with a congenital heart defect/disease
• Authorized family member of a now deceased person with congenital heart defect/disease

You may not qualify if…

• Not having a congenital heart defect/disease

Where it is running

• HeartWorks, Inc. — Rochester, Minnesota, United States (enrolling)

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.