Spanish Wilson Disease Registry

Recruiting now

Conditions studied: Wilson Disease

In brief

The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain. As secondary objectives, the prevalence and incidence of the disease will be analysed. Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment. Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.

Key facts

Study ID

NCT06466291

Run by

Asociación Española para el Estudio del Hígado

People needed

600

Starts

2021-12-02

Expected to finish

2030-12-01

Last updated by the study team

2024-06-20

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with a confirmed Wilson Disease diagnosis

You may not qualify if…

• Refusal to sign the informed consent for the study

Where it is running

• Hospital Clinic — Barcelona, Spain (enrolling)

Full record on ClinicalTrials.gov

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