Wichitasowin: Indigenous Patient Navigator for Young Adults Study

Recruiting now · Not applicable

Conditions studied: Chronic Diseases in Adolescence

In brief

The objective of this pathway is to establish and evaluate a novel Indigenous-led patient navigator (IPN) program for Indigenous adolescents living with chronic health conditions in Maskwacis, Alberta. Over the last three years a community-based participatory research partnership was developed with Elders and community members from Maskwacis, Maskwacis Health Services, and researchers from the University of Alberta. Previous research identified the need for an IPN to support Indigenous young adults and their caregivers in managing their health conditions transitioning into adulthood and transferring from pediatric to adult healthcare. The aim of partnership now is to evaluate whether a community-derived IPN program co-designed with an established group of Maskwacis Elders, Knowledge Keepers, healthcare providers, caregivers and youth with lived experience can aid in improving the experience of transitioning into adult healthcare services for Indigenous youth and their families living in Maskwacis, Alberta.

Key facts

Study ID

NCT06443190

Run by

University of Alberta

People needed

20

Starts

2025-09-01

Expected to finish

2028-03-01

Last updated by the study team

2025-10-07

Who can join

Age: 16 and older, up to 25. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• age 16-25 years;
• having chronic health condition of at least 3 months' duration that requires adult specialty follow-up care, including physical conditions (e.g., diabetes), mental health conditions (e.g., anxiety, depression), and/or developmental disorders (e.g., autism, fetal alcohol spectrum disorder);
• residing in Maskwacis or from the communities of Maskwacis but currently residing elsewhere;
• self-identified as an Indigenous person;
• reading level ≥ grade 6. For participants with developmental or intellectual delay (< grade 6 reading level), they may take part in the program alongside their caregiver(s).

You may not qualify if…

• not identifying as Indigenous
• not residing in Maskwacis

Where it is running

• Stollery Children's Hospital — Edmonton, Alberta, Canada (enrolling)

Full record on ClinicalTrials.gov

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