Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection

Recruiting now

Conditions studied: VEXAS Syndrome

In brief

The aim is rapid collection of real-life data on the epidemiology, treatment and disease course in patients with VEXAS syndrome during routine clinical practice and collect biomaterials to evaluate genotype-phenotype associations, determine optimal treatment schedule, identify diagnostic features and biomarkers

Key facts

Study ID

NCT06377462

Run by

Technische Universität Dresden

People needed

500

Starts

2024-03-13

Expected to finish

2030-12-31

Last updated by the study team

2026-05-15

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome
• Age ≥18 years
• Signed informed consent form

You may not qualify if…

• patients who are not in a position to understand the nature and scope of participation in this register

Where it is running

• Universitätsklinikum Aachen — Aachen, Germany (enrolling)
• Klinikum Chemnitz gGmbH — Chemnitz, Germany (enrolling)
• Universitätsklinikum Carl Gustav Carus — Dresden, Germany (enrolling)
• Universitätsklinikum Düsseldorf — Düsseldorf, Germany (enrolling)
• Evang. Kliniken Essen-Mitte — Essen, Germany (enrolling)
• Universitätsmedizin Göttingen — Göttingen, Germany (enrolling)
• Universitätsklinikum Hamburg-Eppendorf — Hamburg, Germany (enrolling)
• Universitätsklinikum Jena — Jena, Germany (enrolling)
• Universitätsklinikum Leipzig AöR — Leipzig, Germany (enrolling)
• Universitätsmedizin Mannheim — Mannheim, Germany (enrolling)
• Klinikum rechts der Isar TUM — München, Germany (enrolling)
• Klinikum Nürnberg, Campus Nord — Nuremberg, Germany (enrolling)
• Klinikum Osnabrück GmbH — Osnabrück, Germany (enrolling)
• Helios Kliniken Schwerin GmbH — Schwerin, Germany (enrolling)
• Robert Bosch Gesellschaft für Medizinische Forschung mb — Stuttgart, Germany (enrolling)
• Krankenhaus der Barmherzigen Brüder — Trier, Germany (enrolling)
• Universitätsklinikum Tübingen — Tübingen, Germany (enrolling)

Full record on ClinicalTrials.gov

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