Digital Health Pathway for Children With Medical Complexity Requiring Tracheostomy

Recruiting now · Not applicable

Conditions studied: Tracheostomy

In brief

The DECIDE-T project is developing a standardized clinical pathway specifically for pediatric patients who require tracheostomy with or without long-term ventilation (tracheostomy/LTV). These patients represent a small portion of Alberta's population but account for over 50% of pediatric patients hospitalized for more than 180 days. The pathway will include a hospital-to-home directive that incorporates digital health solutions to provide support to families, caregivers, and healthcare professionals. Digital supports will include a Connect Care pathway, resources for informed decision-making, educational modules, high-fidelity simulations for family and caregiver education, an online parental resource center, and access to peer support within the hospital and community, as well as a post-discharge telehealth program. The goal of the DECIDE-T project is to reduce hospital stays and associated costs for children requiring tracheostomy/LTV, as well as to decrease mental distress and burnout experienced by their caregivers and families.

Key facts

Study ID

NCT06375369

Run by

University of Alberta

People needed

180

Starts

2024-09-01

Expected to finish

2027-12-31

Last updated by the study team

2026-01-06

Who can join

Age: any, up to 18. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Age < 18 years
• First tracheostomy placement

Where it is running

• Alberta Children&#39;s Hospital — Calgary, Alberta, Canada (enrolling)
• Stollery Children&#39;s Hospital — Edmonton, Alberta, Canada (enrolling)

Full record on ClinicalTrials.gov

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