Improving Social Relationships for Adolescents With Central Disorders of Hypersomnolence

Completed · Not applicable

Conditions studied: Narcolepsy Type 1, Narcolepsy Type 2, Idiopathic Hypersomnia

In brief

The goal of this study is to test a web-based psychoeducational resource for adolescents with central disorders of hypersomnolence and their families. The investigators hope to assess the website's usability, acceptability, and feasibility, as well as its potential effect on social relationship health. Participants will be asked to review the content of the psychoeducational websites. The participants will then provide feedback on the website, as well as the adolescent's social relationships and social health before and after reviewing the website through online surveys.

Key facts

Study ID

NCT06251063

Run by

Boston Children's Hospital

People needed

25

Starts

2024-04-01

Expected to finish

2025-05-10

Last updated by the study team

2026-03-18

Who can join

Age: 10 and older, up to 17. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Adolescent from 10-17 years of age and parent of the adolescent
• Adolescent has physician-diagnosed narcolepsy type 1 or type 2, or idiopathic hypersomnia
• English fluency
• Interest in learning more about how to improve social health for adolescents with a CDH

Where it is running

• Boston Children's Hospital — Boston, Massachusetts, United States

Full record on ClinicalTrials.gov

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