Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

Recruiting now

Conditions studied: Sarcoidosis

In brief

The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.

Key facts

Study ID

NCT06234384

Run by

Foundation for Sarcoidosis Research

People needed

6833

Starts

2013-07-01

Expected to finish

2033-07-01

Last updated by the study team

2025-09-19

Who can join

Age: 7 and older. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• English speaking
• Consent
• Sarcoidosi diagnosis -

You may not qualify if…

• NONE

Where it is running

• Foundation For Sarcoidosis Research — Chicago, Illinois, United States (enrolling)

Full record on ClinicalTrials.gov

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