Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Recruiting now
Conditions studied: Polyhandicap
In brief
The general objective of PolyAGE is to explore the life experience of familial caregivers of aging persons with polyhandicap (\>= 35 years). The investigators will question parents (objective 1) and siblings (objective 2) about the experiences, the social representations, the needs and the expectations, as well as the mechanisms associated with their choices about their children with polyhandicap. The objective 3 is to co-analyze parents' and siblings' experiences regarding the aging of their relatives with polyhandicap.
Key facts
- Study ID
- NCT06222112
- Run by
- Assistance Publique Hopitaux De Marseille
- People needed
- 82
- Starts
- 2024-06-24
- Expected to finish
- 2027-12-01
- Last updated by the study team
- 2024-12-04
Who can join
Age: 35 and older. Sex: any. Healthy volunteers: accepted.
You may qualify if…
- Mother or father (>=18 years) of a with severe polyhandicap aged 35 and over at the time of inclusion
- Person (>=18 years) having at least one parent in common with a person with a severe polyhandicap aged 35 and over at the time of inclusion
- Person agreeing to participate after having been informed of the study's objectives and procedures
You may not qualify if…
- Parents and siblings whose inclusion criteria concerning the Persons with severe polyhandicap are not fulfilled
- Parents and siblings who refuse to participate
Where it is running
- APHP Hôpital Marin de Hendaye — Hendaye, France (enrolling)
- AP-HP Hôpitaux San Salvadour — Hyères, France (enrolling)
- Fondation John Bost — La Force, France (enrolling)
- Assistance Publique Des Hopitaux de Marseille — Marseille, France
- Université Aix Marseille — Marseille, France
- Université de Montpellier — Montpellier, France
- Groupe Polyhandicap France (GPF) — Paris, France
Full record on ClinicalTrials.gov
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