Mitochondrial Video Assessment Source Material Study

Completed

Conditions studied: PolG, Primary Mitochondrial Myopathy

In brief

Source material collection of videos to develop the Mitochondrial Video Assessment (MVA) for patients with mitochondrial myopathies.

Key facts

Study ID

NCT06180421

Run by

The Emmes Company, LLC

People needed

28

Starts

2023-06-16

Expected to finish

2024-02-02

Last updated by the study team

2024-11-14

Who can join

Age: 16 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• 16 years old and above
• Confirmed diagnosis of PMM or PolG
• Ability to understand and speak English
• Ability and willing to consent
• Able and willing to participate and perform tasks while being recorded
• Designating a recording partner to assist with video captures is strongly advised, but not required

You may not qualify if…

• N/A

Where it is running

• Casimir — Kingston, Massachusetts, United States

Full record on ClinicalTrials.gov

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