Stroke Research Initiative to Advance Equity
Running, not enrolling
Conditions studied: Stroke
In brief
1. Assess patient-centered outcomes (PCOs) amongst stroke survivors and their caregivers in the MedStar Health system longitudinally. i. Utilize a community advisory board (CAB) of stroke survivors and their caregivers to identify the patient-centered outcome(s) that the CAB determine to be most important and valuable to assess based on their lived experiences. ii. Collect the chosen PCOs at multiple time points using an electronic survey tool (e.g. Qualtrics, Tonic or RedCap) 2. Evaluate the impact of social determinants of health (SDoH) and experiences of discrimination on the chosen PCOs. 3. Examine whether there are differences in long-term PCOs amongst stroke survivors from different racial and ethnic groups. 2.2 Hypothesis: The investigator hypothesizes that stroke survivors that come from historically marginalized populations, specifically African American and Latinos, will have lower patient-centered outcome scores overall as compared to their Caucasian counterparts. In addition, the investigator hypothesizes that the difference PCO scores between Caucasian and African American and Latino populations will be due in part to experienced discrimination and not SDoH alone. .
Key facts
- Study ID
- NCT06075719
- Run by
- Medstar Health Research Institute
- People needed
- 1000
- Starts
- 2024-01-10
- Expected to finish
- 2026-06-15
- Last updated by the study team
- 2026-04-02
Who can join
Age: 18 and older. Sex: any. Healthy volunteers: not accepted.
You may qualify if…
- ≥ 18 years old
- Acute Ischemic Stroke (AIS) or Intracerebral Hemorrhage (ICH) patients that have been cared for in the MedStar Healthcare system
- AIS of ICH in the last six weeks
- Ability to communicate in English, Spanish, Amharic, Mandarin Chinese or French (most common languages in the greater Washington, DC area)
You may not qualify if…
- Transient Ischemic Attack (TIA) or Subarachnoid Hemorrhage (SAH)
- Unable to complete required forms
- Life expectancy less than 6 months
- Caregiver
- Inclusion Criteria:
- Age ≥ 18
- Self-identify as primary caregiver for the stroke survivor
- Ability to communicate in English, Spanish, Amharic, Mandarin Chinese, French
- Exclusion Criteria:
- Unable to complete study survey forms
- Life expectancy less than 6 months
Where it is running
- MedStar National Rehabilitation Hopsital — Washington D.C., District of Columbia, United States
- MedStar Washington Hospital Center — Washington D.C., District of Columbia, United States
Full record on ClinicalTrials.gov
Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.