Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers

Recruiting now · Not applicable

Conditions studied: Intellectual Disability

In brief

This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.

Key facts

Study ID

NCT06065527

Run by

Northwell Health

People needed

1050

Starts

2023-12-22

Expected to finish

2029-04-30

Last updated by the study team

2024-01-03

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Family caregivers of individuals with intellectual and/or developmental disabilities living in a community setting
• Ability to speak English or Spanish
• Access to a tablet, computer, or smartphone

You may not qualify if…

• Speaks a language other than English or Spanish
• Does not have access to a tablet, computer, or smartphone
• Caregivers who care for individuals with intellectual and developmental disabilities who are less than 10 years of age.
• Special populations such as: fetuses, prisoners, or other institutionalized individuals

Where it is running

• Cohen Children's Medical Center — New Hyde Park, New York, United States (enrolling)

Full record on ClinicalTrials.gov

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