Juvenile Recurrent Respiratory Papillomatosis: Establishment of a French National Cohort (PRR : National Cohort " REPA ")

Recruiting now

Conditions studied: Juvenile Recurrent Respiratory Papillomatosis

In brief

Recurrent respiratory papillomatosis (RRP) is a rare disease. However, it is the most common benign laryngeal tumor in children. To date, no epidemiological data are available in France. The aim of this study is to establish the epidemiology of juvenile PPR.

Key facts

Study ID

NCT06000527

Run by

Imagine Institute

People needed

200

Starts

2022-10-01

Expected to finish

2032-09-30

Last updated by the study team

2023-08-21

Who can join

Age: any. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Patients with juvenile PRR (disease onset before age 18)
• Followed in the :
• The MALO CRMR
• One of the MALO network's CCMRs
• One of the main correspondent centers

You may not qualify if…

• Patients objecting to the collection of their personal data
• Parents of minor patients objecting to the collection of their child's personal data

Where it is running

• hôpital Necker Enfants malades — Paris, France (enrolling)

Full record on ClinicalTrials.gov

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