A Prospective Longitudinal Study in Adults With Multifocal Motor Neuropathy

Running, not enrolling

Conditions studied: Multifocal Motor Neuropathy

In brief

This prospective longitudinal study will follow participants with Multifocal Motor Neuropathy over time and collect data on their clinical outcomes, quality of life, and use of health care resources. Participants will follow their regular visit schedule with their treating physician, except for an optional second visit occurring 7 to 14 days after the start of the study to collect biomarker data. No IMP will be administered.

Key facts

Study ID

NCT05988073

Run by

argenx

People needed

413

Starts

2023-11-29

Expected to finish

2028-12-31

Last updated by the study team

2026-05-29

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Is at least the local legal age of consent for clinical studies when signing the ICF
• Is capable of providing signed informed consent and complying with protocol requirements
• Has an existing or new diagnosis of MMN made by a neuromuscular specialist or neurologist

You may not qualify if…

• Is currently participating in any clinical study with an IMP
• Has other medical conditions that could affect the assessment of MMN

Where it is running

• HonorHealth Neurology - Bob Bove Neuroscience Institute — Scottsdale, Arizona, United States
• UCI Health - ALS and Neuromuscular Center — Orange, California, United States
• Stanford Medicine Health Care - Stanford Neuroscience Health Center — Palo Alto, California, United States
• The Neurology Group — Pomona, California, United States
• Eisenhower Health - Rancho Mirage Medical Center — Rancho Mirage, California, United States
• UC Davis Health - Lawrence J. Ellison Ambulatory Care Center — Sacramento, California, United States
• UCSF Health - UCSF Medical Center — San Francisco, California, United States
• University of Colorado - Anschutz Medical Campus — Aurora, Colorado, United States
• YaleNewHavenHealth - Yale New Haven Hospital — New Haven, Connecticut, United States
• MedStar Georgetown University Hospital — Washington D.C., District of Columbia, United States
• Medsol Clinical Research Center Inc — Port Charlotte, Florida, United States
• D&H National Research Centers - Tamarac Research Center — Tamarac, Florida, United States
• Hospital Sisters Health System (HSHS) - St Elizabeth's Hospital — O'Fallon, Illinois, United States
• The University of Kansas Health System - Landon Center on Aging — Kansas City, Kansas, United States
• MedStar Georgetown University Hospital — Chevy Chase, Maryland, United States
• Rutgers University - Robert Wood Johnson Medical School — New Brunswick, New Jersey, United States
• Azienda Ospedaliera Universitaria Gaetano Martino — Messina, Italy
• Columbia University Irving Medical Center - Neurological Institute of New York — New York, New York, United States
• University of North Carolina - Chapel Hill — Chapel Hill, North Carolina, United States
• Ohio State University Wexner Medical Center - Ohio State Martha Morehouse Outpatient Care — Columbus, Ohio, United States
• Oregon Health and Science University (OHSU) Hospital - Marquam Hill Campus — Portland, Oregon, United States
• Penn Medicine - Penn Medicine University City — Philadelphia, Pennsylvania, United States
• Penn Medicine - Perelman Center for Advanced Medicine — Philadelphia, Pennsylvania, United States
• University of Pittsburgh Medical Center — Pittsburgh, Pennsylvania, United States
• Neuromuscular Clinical and Research Center — Phoenix, Arizona, United States

Full record on ClinicalTrials.gov

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