Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities

Running, not enrolling · Not applicable

Conditions studied: Intellectual Disability

In brief

This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with intellectual and developmental disabilities. Second, it will determine the comparative effectiveness of the two study arms for improving parent and youth health outcomes while assessing whether parent activation serves as a mechanism that mediates their effects on health outcomes.

Key facts

Study ID

NCT05986305

Run by

University of North Carolina, Chapel Hill

People needed

406

Starts

2023-08-08

Expected to finish

2026-06-30

Last updated by the study team

2026-06-22

Who can join

Age: 11 and older, up to 27. Sex: any. Healthy volunteers: accepted.

You may qualify if…

• Parents
• Raising an adolescent or young adult child (age 11-27), with diagnosed or suspected intellectual or developmental disability
• Able to attend group sessions
• Able to give informed consent
• Resident of any state except New York or Illinois due to electronic signature law
• Youth
• Being between the ages of 11 and 27
• Having diagnosed or suspected intellectual or developmental disability

You may not qualify if…

• Parents
• Having evidence of emergency mental health needs

Where it is running

• The Carolina Institute for Developmental Disabilities — Carrboro, North Carolina, United States
• UNC Adult Psychiatry Clinic — Chapel Hill, North Carolina, United States

Full record on ClinicalTrials.gov

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