Southeastern ATTR Amyloidosis Consortium: SEATTRAC Family Registry

Starting soon

Conditions studied: Amyloidosis, Hereditary

In brief

The study design is a prospective registry including asymptomatic and symptomatic patients who carry a pathogenic TTR mutation. The study will enroll patients who meet the inclusion criteria and none of the exclusion criteria until 1000 patients are enrolled, at which point in time the study investigators will evaluate whether further patient accrual is meaningful.

Key facts

Study ID

NCT05974644

Run by

Virginia Commonwealth University

People needed

1000

Starts

2026-07-01

Expected to finish

2030-12-01

Last updated by the study team

2026-06-09

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Over the age of 18 years
• Carrier of a pathogenic hATTR mutation confirmed on whole blood gene testing or mass spectrometry
• Willing to return for required follow-up visits

You may not qualify if…

• Patient having undergone heart transplantation or implantation of mechanical circulatory support
• Patients unable to provide informed consent
• Patients having undergone liver transplantation
• Patients have evidence of light chain amyloidosis

Where it is running

• Virginia Commonwealth University — Richmond, Virginia, United States

Full record on ClinicalTrials.gov

Trial information comes from ClinicalTrials.gov and is refreshed daily. TrialsForMe does not provide medical care and does not run the studies it lists.