Data Collection Protocol for Patients With Von Hippel Lindau Disease

Recruiting now

Conditions studied: Von Hippel Lindau Disease

In brief

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

Key facts

Study ID

NCT05955014

Run by

M.D. Anderson Cancer Center

People needed

125

Starts

2023-08-24

Expected to finish

2026-12-31

Last updated by the study team

2026-06-26

Who can join

Age: 18 and older. Sex: any. Healthy volunteers: not accepted.

You may qualify if…

• Presence of genetic confirmation or clinical criteria consistent with vHL disease.
• Ability to understand and the willingness to sign a written informed consent document.

You may not qualify if…

• Patients with psychiatric illness/social situations that would limit compliance with study requirements.

Where it is running

• M D Anderson Cancer Center — Houston, Texas, United States (enrolling)

Full record on ClinicalTrials.gov

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